Oculocutaneous albinism (OCA1) is a genetically inherited autosomal recessive condition and tyrosine positive albinism (OCA2) is the most prevalent type found throughout East Africa. Due to the lack of melanin, People With Albinism (PWA) are more susceptible to the harmful effects of ultraviolet radiation exposure. This population must deal with issues such as photophobia, decreased visual acuity, extreme sun sensitivity, and skin cancer. PWA also face social discrimination as a result of their difference in appearance, so they are a vulnerable population because of racism, violence, and trafficking, that led national and international state and non–state actors to commit themselves to do humanitarian advocacy, above all because the targeting of PWA is based to a certain extent on economic concerns. This article asked the negative relationship observed in terms of health and education of PWA in their society, above all affecting their job opportunities and, as a consequence, their poverty.
Buccianti, C., Fusari, V. (2016). Traditional players for a global game. The difficult position of People With Albinism (PWA) in their society (North-West Tanzania). In N. Melis (a cura di), Socioeconomic Disadvantage and Minorities in Africa (pp. 73-102). Roma : Aracne editrice.
Traditional players for a global game. The difficult position of People With Albinism (PWA) in their society (North-West Tanzania)
Cinzia Buccianti;
2016-01-01
Abstract
Oculocutaneous albinism (OCA1) is a genetically inherited autosomal recessive condition and tyrosine positive albinism (OCA2) is the most prevalent type found throughout East Africa. Due to the lack of melanin, People With Albinism (PWA) are more susceptible to the harmful effects of ultraviolet radiation exposure. This population must deal with issues such as photophobia, decreased visual acuity, extreme sun sensitivity, and skin cancer. PWA also face social discrimination as a result of their difference in appearance, so they are a vulnerable population because of racism, violence, and trafficking, that led national and international state and non–state actors to commit themselves to do humanitarian advocacy, above all because the targeting of PWA is based to a certain extent on economic concerns. This article asked the negative relationship observed in terms of health and education of PWA in their society, above all affecting their job opportunities and, as a consequence, their poverty.File | Dimensione | Formato | |
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https://hdl.handle.net/11365/1080086